Considering Treatment

considering treatmentThere are many factors that one must think about when considering treatment for hepatitis C. Current state of health, genotype, work and family circumstances, as well as financial considerations, are all factors that can influence if, and when, a person decides to undergo treatment.

Getting Started

Basic Facts about Hep C Treatment to Consider

Historically, treatment for hepatitis C has been difficult and long – up to a year. However, even now, when newer treatments boost shorter treatment times (8 – 24 weeks) and much less side effects, patients may still face treatment difficulties. A few patients still find that the new treatments are impossible to complete health-wise or find that treatment is too disruptive, given their current life circumstance or health situation. Therefore, patients still decide, or are advised by their healthcare providers, to delay treatment, even when new treatments are now available. Finally, one should be aware that even newer, possibly better, hep C treatments are on their way.

Thinking about Treatment Resources by the Pacific Hepatitis C Network
Thinking about Treatment Resources by Hepatitis Education Canada

Thinking about Treatment Resources by CATIE
Additional ‘Is hep C treatment right for me right now?‘ Resources

Hepatitis Drug Interactions
The University of Liverpool has created a drug interaction chart for the following hep C treatments: Victrelis (boceprevir), Daklinza (daclatasvir), Holkira Pak (ombitasvir/paritaprevir/ritonavir + dasabuvir), Galexos (simeprevir), Sovaldi (sofosbuvir), pegylated interferon, ribavirin. Talk with your doctor about other medications you are taking before starting any new treatments for hep C.

Lucinda Porter
Well-known hepatitis C advocate, health educator, and author, Lucinda Porter, writes about hep C, living with hepatitis, and the treatment journey. Porter’s background, as a Registered Nurse, and her own lived experience with hepatitis C and treatment are all written about by Porter in this blog.

Resources Designed to Help You Talk to Your Doctor

Peer Supports

There are a number of support groups and hotlines available to support you and to answer your questions. Going online is a great way to find local groups and connect to communities through social media, especially on Facebook.

Vancouver Infectious Diseases Centre (VIDC)
VIDC provides education and support for people living with hepatitis C. VIDC is involved with HCV clinical trials and supporting patients in trials. VIDC also offers a weekly treatment support group.

The VIDC Hepatitis C Treatment Support Group includes food and prizes. It takes place Fridays from 10:00-12:00 noon at suite 200 – 1200 Burrard Street, Vancouver.  For more VIDC support group information contact Shawn Sharma (HCV Nurse).

For clinical trial information contact Dr. Harout Tossonian

HCV-411.ca – Find HIV and hepatitis C services near you
The directory includes information about  HIV and HCV services across Canada.

HELP-4-HEP (hepatitis C helpline)
Help‑4‑Hep is a trusted source of information, support, and referrals—all free of charge to you. Call toll-free: 877‑Help‑4‑Hep (877‑435‑7443). Your call is completely confidential.

help4hep hotline image

Help4HepBC (hepatitis C helpline)
Help4HepBC is a peer-to-peer BC helpline where Peer Navigators work with callers to meet the challenges of hepatitis C head-on. Call toll-free: 1-888-411-7578. Your call is completely confidential.

http://www.help4hepbc.ca/

HepCBC – Listing of Canadian peer support groups
HepCBC has a listing of peer support groups across Canada and international. Check out their directory for a group near you.

Pacific Hepatitis C Network Directory of Resources
The directory includes resources in BC, ranging from liver clinics to support groups.

Personal Stories – Stories from the Edge
First-hand stories about second generation DAA treatments

Peer Support Blogs Written by Peers

HepatitisC.net
HepatitisC.net is an American website by Health Union, LLC, that was developed to provide hep C information and connect those who have been effected by hep C. It publishes articles by patient advocates, caregivers, and healthcare professionals. Daryl Luster, PHCN’s president, has contributed content to the site.

Hep BOOMers
Hep BOOMers is a blog mainly written by Elizabeth Rains, a blogger, a baby boomer, and a hep C survivor. She invites participation from everyone in the hepatitis C community, and writes about treatment, finding a cure, and advocacy.

Contact us at hepctip@pacifichepc.org

The information on this website is meant as a resource only and is not intended to replace qualified medical attention. Please seek advise and guidance from your health practitioners when considering your hep C treatment options.