There are many factors that one must think about when considering treatment for hepatitis C. Current state of health, genotype, work and family circumstances, as well as financial considerations, are all factors that can influence if, and when, a person decides to undergo treatment.
- Get some basic facts and information about hep C and treatment options
- Talk with your doctor/health care provider about different options available
- Connect with people who have been through different treatments. There are great in-person and online peer support resources.
- Talk with your family and friends about your options
Basic Facts about Hep C Treatment to Consider
Historically, treatment for hepatitis C has been difficult and long – up to a year. However, even now, when newer treatments boost shorter treatment times (8 – 24 weeks) and much less side effects, patients may still face treatment difficulties. A few patients still find that the new treatments are impossible to complete health-wise or find that treatment is too disruptive, given their current life circumstance or health situation. Therefore, patients still decide, or are advised by their healthcare providers, to delay treatment, even when new treatments are now available. Finally, one should be aware that even newer, possibly better, hep C treatments are on their way.
Thinking about Treatment Resources by the Pacific Hepatitis C Network
- NEW Next Generation Treatments about treatments still in early clinical trials
- Hep C Drug Pipeline Treatments about treatments not yet covered by PharmaCare
- Comparing Hep C Treatments about treatments covered by PharmaCare
Thinking about Treatment Resources by Hepatitis Education Canada
- ‘Getting ready for Treatment’ resource guide
- Negotiating for Hepatitis Care and Support
- Hepatitis C Treatment OPTIONS: Basic Information for Patients
This interactive tool will provide you with personal hepatitis C treatment recommendations that can be printed for reference or to be taken to your healthcare provider.
- Mini-video: Ever had hepatitis C treatment? (below)
Thinking about Treatment Resources by CATIE
- Hepatitis C: Thinking about hep C treatment
- Hepatitis C: An in-depth Guide to hep C treatment
- Managing side effects of hep C treatments
Additional ‘Is hep C treatment right for me right now?‘ Resources
Hepatitis Drug Interactions
The University of Liverpool has created a drug interaction chart for the following hep C treatments: Victrelis (boceprevir), Daklinza (daclatasvir), Holkira Pak (ombitasvir/paritaprevir/ritonavir + dasabuvir), Galexos (simeprevir), Sovaldi (sofosbuvir), pegylated interferon, ribavirin. Talk with your doctor about other medications you are taking before starting any new treatments for hep C.
Well-known hepatitis C advocate, health educator, and author, Lucinda Porter, writes about hep C, living with hepatitis, and the treatment journey. Porter’s background, as a Registered Nurse, and her own lived experience with hepatitis C and treatment are all written about by Porter in this blog.
Resources Designed to Help You Talk to Your Doctor
- BCCDC’s ‘A Guide for Getting Ready for Hepatitis C Treatment’, an 11 minute video
- HealthLink BC‘s Hepatitis C: Treatment Overview
- CATIE – ‘The doctor-patient relationship’ written for those with HIV, but useful for hep C patients as well.
There are a number of support groups and hotlines available to support you and to answer your questions. Going online is a great way to find local groups and connect to communities through social media, especially on Facebook.
Vancouver Infectious Diseases Centre (VIDC)
VIDC provides education and support for people living with hepatitis C. VIDC is involved with HCV clinical trials and supporting patients in trials. VIDC also offers a weekly treatment support group.
The VIDC Hepatitis C Treatment Support Group includes food and prizes. It takes place Fridays from 10:00-12:00 noon at suite 200 – 1200 Burrard Street, Vancouver. For more VIDC support group information contact Shawn Sharma (HCV Nurse).
For clinical trial information contact Dr. Harout Tossonian
HCV-411.ca – Find HIV and hepatitis C services near you
The directory includes information about HIV and HCV services across Canada.
HELP-4-HEP (hepatitis C helpline)
Help‑4‑Hep is a trusted source of information, support, and referrals—all free of charge to you. Call toll-free: 877‑Help‑4‑Hep (877‑435‑7443). Your call is completely confidential.
Help4HepBC (hepatitis C helpline)
Help4HepBC is a peer-to-peer BC helpline where Peer Navigators work with callers to meet the challenges of hepatitis C head-on. Call toll-free: 1-888-411-7578. Your call is completely confidential.
HepCBC – Listing of Canadian peer support groups
HepCBC has a listing of peer support groups across Canada and international. Check out their directory for a group near you.
Pacific Hepatitis C Network Directory of Resources
The directory includes resources in BC, ranging from liver clinics to support groups.
Personal Stories – Stories from the Edge
First-hand stories about second generation DAA treatments
Peer Support Blogs Written by Peers
HepatitisC.net is an American website by Health Union, LLC, that was developed to provide hep C information and connect those who have been effected by hep C. It publishes articles by patient advocates, caregivers, and healthcare professionals. Daryl Luster, PHCN’s president, has contributed content to the site.
Hep BOOMers is a blog mainly written by Elizabeth Rains, a blogger, a baby boomer, and a hep C survivor. She invites participation from everyone in the hepatitis C community, and writes about treatment, finding a cure, and advocacy.
Contact us at firstname.lastname@example.org
The information on this website is meant as a resource only and is not intended to replace qualified medical attention. Please seek advise and guidance from your health practitioners when considering your hep C treatment options.