Tag Archives: help-4-hep

The PHCN’s News in Review Newsletter (06/04/17)

The PHCN's News in Review Newsletter (07/04/17)Welcome to the Pacific Hepatitis C Network (PHCN)‘s Hepatitis C News in Review Newsletter. This is where we review all of the major current issues and events around hepatitis C and hep C treatments. It is an email that includes links to our recent blog posts—including links to a blog post about the importance of eliminating hepatitis C.

Hepatitis C Elimination is Possible and Essential

The group most impacted by hepatitis C, some 60,000 in B.C., are baby boomers, those who were born between 1945 and 1965. Many have lived with the infection for years but have never been tested or treated because they have never believed themselves to be at risk.  This is the time that everyone, including baby boomers, should be tested and treated for hepatitis C.

Relapse, Recurrence, Null & Partial Response/rs

In hepatitis C and hep C treatment there are three ‘R’s that are big, sad, and scary. They are the bringers of sadness that if doctors, friends, and communities could protect someone from, they would. Click the above link for more information.

Epclusa, Zepatier, Daklinza, and Sunvepra Expanded Coverage

Coverage for four hepatitis C treatments has changed. The four new hepatitis C treatments (Epclusa, Zepatier, Daklinza, and Sunvepra) are being or have been added to various provincial formularies across Canada.

Technivie and BC PharmaCare

Technivie, the hepatitis C treatment, was approved for use in Canada in October 2015 and then later went on to pursue approval for BC PharmaCare coverage in January 2016. However, negotiations that may have led to BC PharmaCare coverage being granted in the near future were closed as an agreement couldn’t be reached between AbbVie and pCPA at this time.

Holkira Pak and BC PharmaCare

The hepatitis C treatment Holkira Pak was approved for use in Canada in March 2015 and then was later approved for BC PharmaCare coverage in July  2015. Although Holkira Pak is still approved for use in Canada and has an amazingly high cure rate, as of March 23, 2017, BC PharmaCare wont cover it.

Blog Posts by PHCN’s President Daryl Luster

Coming this Spring

Eh, starting this spring, Help-4-Hep helpline will be in Canada.  Help-4-Hep is a non-profit, peer-to-peer helpline where counselors work with patients to meet the challenges of hepatitis C head-on. Look for more details to come or call the American Help-4-Hep helpline all free of charge.

For more information about hepatitis C and its cures, please email or visit the Hepatitis C Treatment Information Project.

Holiday Hep C Help

Holiday Hep C HelpThis may be a stretch, but the following tools and tips may be helpful to you this holiday season.

Quick Gift Ideas for Yourself and Others

  • Help.4.Hep: A self-care app for managing hepatitis C – You didn’t choose this journey, but you can make it your own. A new hep C app is now being offered to help you do just that. The app was designed to help you keep track of how you are doing and surround yourself with people who care. It was designed to help you remain in control. More information can also be found in our blog post Remain in Control with a New Hep C App. FREE

  • Medisafe Medication Reminder and Pill Organizer app – This app helps you stay on top of medications, updates, appointments, and medical reports with a variety of themes. One of the themes is Star Wars. With it, Yoda warns you that if you don’t take your meds, you will never be a Jedi Master and if you don’t turn the warning off, and hopefully take your pills, it can be set to message a contact person. The force is with you and, in this case, it is FREE.

  • HCV Guidance App – A digital version of the HCV Guidance, for your mobile device that highlights current evidence-based, expert-developed recommendations for hepatitis C management. It was created by Guideline Central, the American Association for the Study of Liver Diseases (AASLD), and the Infectious Diseases Society of America (IDSA).

  • Donations in your name or in the names of others – Organizations that help those with hepatitis C or help fund research often welcome donations and give tax receipts in return. Some can be found through websites such as CanadaHelps.org, and then by searching hepatitis C or liver.

There are also numerous blood presser, diet, exercise, and heart health  apps that may be fun to test during the holidays.

Liver Health Holiday Reminders

Tips and resources for surviving side effects of hep C treatments can be found at Tips for Surviving Side Effects.

Liver Healthy Recipe Sources

Your best resource for this topic will always be your healthcare provider.

Friendly Ears

Crisis Centre
The Crisis Intervention and Suicide Prevention Centre of BC (Crisis Centre) is a non-profit, volunteer organization committed to helping people help themselves and others deal with crisis. Call 1-800-784-2433.

HELP-4-HEP (hepatitis C helpline)
Help‑4‑Hep is a trusted source of information, support, and referrals—all free of charge to you. Call toll-free: 877‑Help‑4‑Hep (877‑435‑7443). Your call is completely confidential.

Happy holidays from the Hepatitis C Treatment Information Project! May your days be merry and bright!

Remain in Control with a New Hep C App

Remain in Control with a New Hep C AppYou didn’t choose this journey, but you can make it your own. A new hep C app is now being offered by Help-4-Hep and Self Care Catalysts to help you do just that. It was designed to help you keep track of how you are doing and surround yourself with people who care. It was designed to help you remain in control.

The hep C app can be personalized. By letting you create your own profile and add in your own health conditions and goals, it personalizes your Health Tools.

Its Circle of Support option allows you to add the email addresses of loved ones who can then also access any information that you want them to see via the hep C app’s Health Tools.

The hep C app’s Health Tools are:
  • Daily Mood – Recording your mood is a proven way to keep track of how emotions relate to overall health.
  • Medication Tracker – Set up medication reminders so that you don’t forget to take them.
  • Symptom Tracker – Keep track of your symptoms to have an accurate history to share with your doctor at your next appointment.
  • Daily Vitals – Track your health vitals and see them all in one place.
  • Appointment Calendar – Remember important dates and events related to your well-being. Every entry includes space for notes and can be linked to other app users, your support team, so that they can view it.
  • My Journal – Document your thoughts around your health and daily living. Entries can be organized under: ‘Reflection on my condition today’, ‘People I am thankful for today’, ‘Accomplishments that made me feel good today’, ‘Insights that I have gained about myself today’, ‘Write anything!’
  • Healthy Doses – A collection of quotes/healthy wisdom for your mind and spirit about gratitude, optimism, and mindfulness.
  • HCV Lab Tests – All of the other health tools can be used for other conditions as well. This tool was specifically created for keeping a record of hep C lab results. It has areas to record information such as HCV genotype, bilirubin, HCV viral load / RNA, etc.
  • Questions to Ask – Make the most out of your visits with your healthcare provider by being prepared with questions to ask, and by taking notes during your appointment.
  • Meal Tracker – Document your meal patterns to make sure that you are eating regularly, every 3 to 4 hours, during the day.

Watch the Video

Help‑4‑Hep is a non-profit toll-free helpline for those with concerns about hepatitis C. Toll-Free. Completely confidential. Completely free of charge. Available 9:00 AM to 7:00 PM Eastern Time, Monday through Friday (closed US legal holidays).

CALL 877‑HELP‑4‑HEP (877‑435‑7443) for more information.

Help-4-Hep and Self Care Catalysts hep c app

New Hep C Mobile and Web App

New Hep C Mobile and Web AppA new hep C mobile and web app is now being offered by Help-4-Hep and Self Care Catalysts.

The new web and mobile app is free and available on desktop, laptop, mobile, and tablet devices. Interested users can sign-up online, or download the app from the App Store or from Google Play. It is available both in Canada and the US.

The hep C app provides self-care tools for people living with hep C to help them manage their hep C and prepare for treatment. It offers tools to do things like document lab tests, manage daily diet and nutrition, and track feelings and emotions.

App users can also call the Help-4-Hep hotline (877-435-7443) directly from the app and discuss their condition with a counsellor.

The new app aims to support more individuals living with hep C who are waiting for treatment.

About Help-4-Hep

Help-4-Hep is a non-profit, peer-to-peer helpline where counsellors work to meet the challenges of hepatitis C head-on. Callers talk one-to-one with a real person, typically someone who’s had hepatitis C touch their own life. The support is free of charge.

Daryl Luster, PHCN‘s President of the Board of Directors, works tirelessly as one of Help-4-Hep’s peer counsellors.

For more information or counselling support call the Help-4-Hep hotline toll free at 877-Help-4-Hep (877-435-7443).

About Self Care Catalysts

Self Care Catalysts is a patient solutions, intelligence and analytics company that enables healthcare innovation. Their mission is to build innovative, patient-centered, and technology-driven self-care solutions that help patients manage their care outside of the clinical setting. 

Help-4-Hep's hep C mobile and web app